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While that may have been perfectly functional in the past, it’s not any longer. For many funders and even board members of advocacy organizations, “success” is also financial but the On the cusp of success or at a time when gains are being disrupted by yet another pandemic and the politics Our funders must maintain a commitment to funding patient advocacy now, more than ever, because the stagnation

about their experiences in payers who refuse to cover PrEP and the associated services necessary to maintain Despite all of the value advancing pharmaceutical products and medication modalities may offer us, payers prioritizing costs over benefits realized by patients threatens to undermine the modern gains in the fight against HIV.This point moves from acute to near painful when considering one pillar of the Ending of patient-realized access, they could simply make the penalties for failing to adhere to the law so painful

mean “seize an opportunity to move forward an agenda,” while the latter focuses solely on personal gain and potentially harmful consumer items.The COVID-19 pandemic offered a fresh chance for a scheme that gained 2019 to CanaRx, an entity that contracts with self-funded health care plans.Most disturbingly, despite many For patients seeking assistance in affording your medications, PAN Foundation may be able to help.

Simons additionally warned that while the appetite for PDABs may be fading, it is likely to be replaced The federal Most Favored Nation (MFN) executive order signed in May 2025 has since evolved into TrumpRx A Bain & Company survey found that approximately 80% of payers now have an AI strategy in place or in effect January 2027, requiring adults ages 19-64 to complete 80 hours monthly of approved activities to maintain strategist Jason Cabel Roe captured the political bind: "This is an issue we've been railing on for how many

This practice limits choice and forces many to pay more out-of-pocket for their medications. Networks and Steering: PBMs often require patients to use their own pharmacies, frequently through mail During the July 2024 Congressional hearing, leaders from CVS Caremark, Express Scripts, and OptumRx maintained However, given PBMs' significant resources and influence, changes may be hard-fought and take time to There is the possibility that PBMs may find new ways to maintain their market position and profitability

President Trump's May 12th executive order establishing Most Favored Nation (MFN) pricing for prescription To casual observers, this may sound appealing on its surface. QALYs attempt to measure treatment value by calculating both quantity and quality of life gained, but Under QALY calculations, because Person B may not achieve the same "quality" of life after treatment We maintain the most critical advantage in the world: developing the most effective, safest medicines

HIV/AIDS is mainstreamed and routine even, close to “normal” if measured by expected life expectancy. Daily advocacy commitments for many individuals have been superseded by the ability to live a normal levels from local towns all the up through our national leadership in Washington, where there will be many Firstly, to ensure that the folks we endeavor to speak for do not lose the hard-won gains of the last cheeseboard of political life now has more movable pieces than ever and specific policy changes affect many

, and how expansion of the Affordable Care Act’s subsidies resulted in lower insurance premiums for many Urging Congress to pass the Mainstreaming Addiction Treatment Act (MAT Act), President Biden is seeking telemedicine expansion was welcomed by patients across the nation but Congress is poised to claw back those gains For many of us, while the state of the union is improving coming out of the Omicron wave of the COVID

announced his administration would end the public health emergency (PHE) declaration related to COVID-19 in May In order to get a refill or maintain treatment, a patient would have to then arrange for an in-person production of controlled substances, to comment in support of adjustments to the proposed rules that would maintain access to care, meet the stated public health goals of the Biden Administration, and, most directly, maintain The public may submit comments here and here.

since 1994 - while pharmaceutical companies Amgen, Eli Lilly, and UCB pursue litigation arguing that many proposed documentation requirements emerge as HRSA faces pressure to tighten program oversight while maintaining Department of Health & Human Services (HHS), arguing that many STI clinics improperly qualify for the Boasberg refused to dismiss the claims on August 4, 2025, the litigation gained momentum.

than HIV also affects access to care for PLWHA and, in some cases, where care or coverage is denied may latest iPhone” by emphasizing how the fight against HIV will not be won by having disparities in access maintained and the “forced modernization” of health care in many situations – namely, telehealth. We can’t blink,” I shared with the group to many nods as concerns for patients who dropped out of care We sought and gained inspiration and enthusiasm and we do so with clear cognizance of COVID-19 as a risk

first”), payers have paid their lawyers quite well to find loopholes or design new problems in order to maintain They’re not something we can afford to pay for up front and mail-in a rebate request and wait months initiate a lawsuit to halt the implementation of CMS’s backwards and punitive rule.While patient advocates may Yes, PhRMA may be leading up this suit - and CMS should listen to the needs of patients, reverse course